Hello readers, and welcome to another August bonus. I’d almost call it an emergency bonus, because although I debated writing about this, it calls to be written. Soon enough, it will be old news.
If you read the title, you probably know what I’m talking about. According to several news and social media outlets, such as CNN, Twitter, etc., Iceland is in the news for a medical “breakthrough.” They are “on pace” to completely eliminate Down Syndrome in their country through abortion. Currently, the abortion of Icelandic babies prenatally diagnosed with Down’s is nearly 100%.
Now, before we go further, let me make clear what I am not here to do.
-I am not here to debate abortion in itself. I am pro-life for religious, moral, and ethical reasons. You can be pro-life or pro-choice and I will still respect you.
-I am not here to condemn women who have already had abortions, for any reason. Considering that abortion is presented as the “only” or “best” option in many cases, I tend to think the mothers are just as victimized as the babies. This is especially true when a baby is aborted because of Down’s or another disability. That is, the mother is basically told, “Abort or care for this baby long into retirement; abort or give this baby a life that isn’t fair.” No. What’s unfair to both parties, is that rhetoric.
-I am not here to say babies with Down’s Syndrome are more or less valuable than babies without it, or to suggest any baby be aborted for any reason.
With that out of the way, let’s talk.
This scares me, folks. It scares me and makes me downright mad–the kind of mad that leaves you with an urge to punch something. It leaves me feeling helpless, because other than saying how I feel, signing petitions, and praying, what can I do? (Yes, I know those things are taking action. But it’s kind of hard when what I really want to do is hop a plane to Iceland, find someone who thinks Down Syndrome elimination is positive, and say, “What the HELL are you thinking????”)
Then again, Iceland isn’t alone in its thinking. In America, about 90% of prenatally diagnosed babies with Down’s are aborted each year. Down Syndrome is upheld as one of the most common reasons for abortion, as well as one of the disabilities we must work hardest to cure or eliminate. It’s right up there with autism. Parents live in fear of a Down Syndrome diagnosis for their unborn children–any disability diagnosis really, but especially that one.
And of course I have to ask myself, why is that? Down Syndrome is the most common chromosomal disorder, affecting 30% of our babies, who grow up to be children, who grow up to be adults. In other words, for every 100 people, we’re choosing to kill 20-30 because they were born with an extra chromosome. We’re trying to eliminate an entire population of people, using eugenics. We’re “selecting against” Down Syndrome the way dog and cat breeders select against certain colors, markers, or other breed traits. Forget Iceland–what the hell is everybody thinking?
Well, okay, I’ll try to answer that. I know what people might be thinking because I’ve heard and seen the arguments for days. Here are a few common arguments and my answers to them:
-“It’s better to have a healthy child than a child you have to care for all your life.” Okay, first, the presence of a disability does not equal ill health. Disability is not the opposite of health; sickness is the opposite of health. Down Syndrome or other disability does not equal “disease.”
As for caring for the child all your life, I have two things to say to that. One, every parent, whether or not their children have disabilities, will care for their children as long as they can no matter what. I’m over thirty and my mother still tries to baby me. She calls my twenty-seven-year-old brother to make sure he’s okay. She and my dad still buy us groceries, help with household issues, etc. And another thing: that brings me to the social circles of people with Down Syndrome. Too often, the lives of these people revolve around their parents. Their parents are the primary providers, caregivers, friends, etc. That tells me society at large is doing a lousy job. Instead of abortion, let’s focus on providing services so that people with Down Syndrome have options other than their parents.
-“Your child will likely end up in a home/needs to be institutionalized.” For the majority of individuals, this is not true. Even for those with severe Down Syndrome, it doesn’t have to be true–unless your community lets it be. This brings us back to the question of authentic, community-based services that highlight competence, vs. institutional care that highlights incompetence and makes PWDs look abnormal or subnormal. If you learn nothing else from this post, learn this: As long as we consider PWDs primarily different, their futures will never improve. As long as we consider PWDs primarily different, abortion, institutionalization, and poor quality of life will remain on the table.
-“Your child will suffer.” This is the basic argument that sums up objections like, “Your child will not be able to do X/will not be smart/will never be this person, go this place, have this experience.” My response to that is, human suffering is inherent. It’s the world we live in. If people with Down Syndrome suffer more than everybody else, whose fault is that? Certainly not theirs.
-“You’re not ready for this.” Really? Who’s really ready to raise a kid, disability or not? I’d venture to say nobody is. If you need financial, physical, or emotional help, get it. It’s out there. Push as hard and as long as you have to. Don’t make an innocent baby pay the price.
-“You don’t deserve this.” This one, I’m not really gonna touch. It makes children with Down Syndrome seem like burdens, monsters, and things nobody wants. Yes, things, not people. But they are people.
So, now we’ve covered some arguments as to why someone might abort a kid with Down’s, or any other disability for that matter. But that leaves me with one more question: why babies with Down Syndrome, specifically? Why have they been marked for elimination when others are not, at least not at a rate of 90-100%? Here’s a quick list of the top reasons I came up with:
-Down Syndrome is a visible disability, and a highly visible one at that. It’s one of the only ones you can name on sight. Many prospective parents don’t want to be associated with that.
-Down Syndrome is first and foremost an intellectual disability. Many parents are afraid of having a child with this kind of disability because they fear what will happen to him or her. As in, “Will he be able to go to school? Can she have a job? Will he ever live on his own? What will she be able to learn, if anything?”
-Down Syndrome is chromosomal, and it has been proven that your chances of having a child with one go up if certain factors are in play, such as age. The higher the odds, the more anxious prospective parents become.
-Because of the first two points above, people with Down Syndrome are often discriminated against or otherwise treated poorly.
Fortunately, there are answers to these reasons. I’m not going to spend a lot of time on them but here are a few things to think about:
-A visible disability is not the end of the world. It doesn’t make someone “more disabled.” Also, a visible disability is not a reflection of you as a parent. It simply means you gave your child an extra chromosome, just like you gave them blue eyes or curly hair. Big deal.
-The fears associated with Down Syndrome largely exist because of stereotypes, lack of understanding, and continued predictions of grim futures for those living with it. It’s not the responsibility of the person with Down’s to change those things. It’s our responsibility. Instead of treating these people as “other,” we need to say, “They are valued members of the community, and we will treat them as such.” This includes providing services not only to the individual, but to their families. As in, don’t encourage a woman to abort a baby with Down Syndrome because of the expense of care. Give her avenues to get that care. Adoption agencies, keep your heads up. When you take in a baby or toddler with Down Syndrome, presume he or she can learn, can do things, and can live a fulfilling life. Make that clear to prospective adoptive parents.
-Although genetic and other factors exist, they are not guarantees of one outcome or another. Many prenatal Down Syndrome diagnoses are wrong. For those that are right, well, there’s still a ton of hope for that baby. He or she will grow up to be a unique, beautiful, deftly created individual with the potential to be more than you thought–if you allow that to happen.
When it comes to babies with Down Syndrome, Iceland’s mind seems frozen shut and its heart ice cold. America isn’t far behind, but we can change the trajectory if we choose. I close out today with a plea: Speak up. Think about what abortion of these babies tells the rest of the world. These babies have no voices, but you do. Say for them, “I have the right to live.”